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News, Views and Useful Links…April 2019 edition

Date: 03 May, 2019  No Comments  ASUK USER

Welcome to your April edition of News, View and Useful Links. In this edition we have included information about lots of fun activities. Whether your ideal trip is a theatre trip to see an audio described version of Les Miserables, sailing the high seas or a fun family day – there is something for everyone.


Around the World with Alstrom #AlstromGlobal

Date: 02 May, 2019  No Comments  ASUK USER

Jetting off to the Alstrom Syndrome International Conference in the USA! ASUK Trustee, Alex Griffiths-Rayson and Chief Executive, Ann Chivers set-off on the 30th April 2019 to attend the Alstrom Syndrome International conference in Texas, USA. The event was spread over 5 days from the 2nd – 6th May 2019 and included family and professional


Happy Easter!

Date: 18 Apr, 2019  No Comments  ASUK USER

Easter can be a tricky time when you are trying to watch what you eat, with all those tempting treats…  but there are lots of tasty alternatives out there for you to try. Diabetes UK have some delicious options for you to try, including Easter biscuits, click here to find out more. Change 4 Life


News, Views and Useful Links… March 2019 edition

Date: 15 Apr, 2019  No Comments  ASUK USER

In this latest edition, read how one of our members literally ‘Reached for the Skies’ and how you can make your own adventure a reality… Also, what did we get up to on Rare Disease Day, great fun was had by all! Click here to view our latest e-newsletter.


My Guide Dog and Me…

Date: 12 Apr, 2019  No Comments  ASUK USER

Have you ever wondered what having a guide dog is really like, how are you assessed and what training is involved? Meet Kion and Curtis, they have both passed their guide dog assessment and are now on the waiting list to have their first guide dog… Following their assessment, they were both invited to Shireview Guide


Travelling Blind; Where will your adventure take you?

Date: 08 Mar, 2019  No Comments  ASUK USER

  On 7th March 2019 BBC Two aired a travelling show with a difference, Travelling Blind. This featured Amar Latif, founder of Travel Eyes and comedian Sara Pascoe as they embark on an adventure across Turkey. This is a truly beautifully filmed programme, which takes you on the adventure with them. Reminding us, to use