Latest News
Date: 21 May, 2024 Jai’s Dream Took Flight at Birmingham Airport! Work experience gives young people the opportunity to have a short-term placement with an employer, to work alongside people as they go about
Join our Alström Chats Our Care Coordinator, Clair Pudaruth is bringing parents and carers of those affected by Alström Syndrome in the UK together, to share their experiences, insights and
Melissa joins the ASUK Team We have the fantastic news, that Melissa Crowland who many of you will know as one of our Trustees has now joined our ASUK team
LifeArc launches £40m research centres to hopefully unlock new tests and treatments for people living with rare diseases The aim of the 4 new LifeArc Translational Centres for Rare Diseases,
Wising you all a lovely time over the festive period Grab something warm to drink and take 5 minutes to read these uplifting family stories in our latest Winter newsletter.
Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of