Save the Date! 19th October 2019

Date: 15 Aug, 2019  No Comments  ASUK USER

ASUK is very excited to announce that the next ASUK family gathering will take place in Birmingham on Saturday 19th October 2019.  ASUK are planning a family event to bring us all together; for a day full of information and updates, accessible product demonstrations and interactive workshops.  This will be followed in the evening by time to reconnect

We’ve joined the Rare Revolution!

Date: 30 Jul, 2019  No Comments  ASUK USER

We are proud to announce that we are now a Charity Partner and an integral part of the Rare Revolution magazine, helping to bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community.  We hope this will raise awareness of Alstrom Syndrome alongside other rare conditions and will

Be a Rare Champion!

Date: 01 Jul, 2019  No Comments  ASUK USER

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when Nichola Martland along with her friends and family persuaded her friend to be waxed!! Eeekkk!! We rely on your continued generosity and support to continue

Accessible Travel Lounge Opens!

Date: 11 Jun, 2019  No Comments  ASUK USER

Rail passengers using Birmingham New Street Station can now use a new assisted travel lounge which opened on the 10th June 2019. The lounge was provided by Network Rail as part of their ‘Railway Upgrade Plan’ and was designed with the guidance of Birmingham New Street’s accessibility forum, which includes people with disabilities, their carers

Disabled Blue Badge Rules are Changing

Date: 10 Jun, 2019  No Comments  ASUK USER

Biggest overhaul to the Blue Badge Scheme Did you know that the Blue Badge scheme is to undergo the biggest changes since the 1970s? From April 2019, the scheme will be expanded to include people with what is often described as ‘hidden disabilities’, such as mental health issues or autism. Automatic entitlement to the Blue

News, Views and Useful Links… May 2019 edition OUT NOW!

Date: 24 May, 2019  No Comments  ASUK USER

Welcome to your May edition, of News, Views and Useful Links.   In this May edition we have a full round up for you, including Ann and Alex jetting off to the Alstrom Syndrome International conference in the USA! and HOT OFF THE PRESS ASUK are hosting a family event later this year, full of