Rare Diseases


Easy Fundraising – whilst you shop!

Date: 09 Jan, 2018  No Comments  ASUK Author

Did you know that you can support Alström Syndrome UK by shopping online? Every time you shop online via easyfundraising at one of the 3,300 retailers including John Lewis, Aviva, Sainsbury’s and Booking.com, a donation will be made to Alström Syndrome UK, and it won’t cost you a penny extra. It’s really simple to get


Tribute to true Champion, Christine Lavery MBE

Date: 02 Jan, 2018  No Comments  ASUK Author

We were saddened to hear that Mrs Christine Lavery, MBE and Chief Executive of the Society for Mucopolysaccharide Diseases (MPS Society) sadly passed away on the 19th December 2017, following a short illness. Christine started the MPS Society with her Husband in the early 1980’s and she has been truly dedicated to making a difference