Bowled over by this donation!

Date: 15 Feb, 2018  No Comments  ASUK USER

A HUGE THANK YOU to Wickersley Cricket Club! Members of Wickersley Old Village Cricket Club kindly donated £1,700 to Alström Syndrome UK following a successful summer fundraising event. 16 year old Kion, who is affected by Alström Syndrome and whose family are members of the club gratefully accepted the donation. The funding will go towards a fun-filled activity

Join our Team

Date: 12 Feb, 2018  No Comments  ASUK USER

Project Outreach Officer – apply today! Would you like to contribute to the development of supportive and inclusive services for individuals and families affected by genetic disorders and support patients to have a voice? The aim of the Breaking Down Barriers project is to strengthen the ability of patient organisations and support groups to develop

News, Views and Useful Links (February edition)

Date: 09 Feb, 2018  No Comments  ASUK USER

News, Views and Useful Links! Reaching for the Sky! One of our members Simmie who is always looking for a new challenge, shares her thoughts on her new love for trampolining, proving it is what you can do that counts. “I have recently started going to a trampoline park which opened in Birmingham not long

Easy Fundraising – whilst you shop!

Date: 09 Jan, 2018  No Comments  ASUK Author

Did you know that you can support Alström Syndrome UK by shopping online? Every time you shop online via easyfundraising at one of the 3,300 retailers including John Lewis, Aviva, Sainsbury’s and Booking.com, a donation will be made to Alström Syndrome UK, and it won’t cost you a penny extra. It’s really simple to get

It’s Christmas – let’s Read, Watch and Make Snow!

Date: 20 Dec, 2017  No Comments  ASUK Author

Over the festive period why not take the time to grab something warm and comforting and have a read of our latest winter newsletter, full of updates and family stories click HERE to view You can also click HERE to watch these truly insightful videos from parents, Clinicians and people affected by Alström Syndrome. Where