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Get Involved in the RareCare Project: Shaping the Future of Rare Disease Care

Date: 28 Oct, 2025  No Comments  ASUK USER

RARECARE PROJECT: Help Shape the Future of Rare Disease Care in England       We are inviting people living with rare conditions and/or their carers to take part in interviews and focus groups for the RareCare project. This research is part of an independent evaluation of England’s Rare Disease Framework and Action Plans. We want