Latest News


Planning for the Future

Date: 06 Nov, 2025  No Comments  ASUK USER

  This is often a topic, which we choose to leave for another day, but planning for the future is important. The charity, Contact for families with disabled children have partnered with Renaissance Legal to offer webinars about planning for the future for you and your family. In case you missed their recent webinar ‘Planning


Covid-19 Vaccine Autumn Info

Date: 05 Nov, 2025  No Comments  ASUK USER

Information about the Covid-19 Vaccination Autumn 2025 At this time of year, many of you will have had information about getting your flu vaccination, but you may be wondering why you haven’t been called for your Covid-19 autumn booster. Our AS Clinical Experts in the UK, Dr Tarek Hiwot and Dr. Shyam Madathil have given


Get Involved in the RareCare Project: Shaping the Future of Rare Disease Care

Date: 28 Oct, 2025  No Comments  ASUK USER

RARECARE PROJECT: Help Shape the Future of Rare Disease Care in England       We are inviting people living with rare conditions and/or their carers to take part in interviews and focus groups for the RareCare project. This research is part of an independent evaluation of England’s Rare Disease Framework and Action Plans. We want


Hot off the press… Summer newsletter out now!

Date: 14 Aug, 2025  No Comments  ASUK USER

Whilst the weather hots up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter. Summer 25 Newsletter It’s full to the brim with uplifting family stories, community and research updates and information about how to safe and well in the heat. Please


Beat the Heat

Date: 09 Jul, 2025  No Comments  Alstrom Admin

BEAT THE HEAT! The UK is bracing itself for another heatwave, and as these seem to be occurring more frequently, we’ve pulled together some top tips to help keep you and your loved ones safe, cool, and well. Look After Each Other A heatwave can affect anyone, but some people can be affected by the


Caring About Our Carers

Date: 13 Jun, 2025  No Comments  Alstrom Admin

We Care about Equality for Our Carers This week is Carers Week, from the 9th – 15th June 2025 The most recent Census 2021 found that there are 5.8 million unpaid carers in the UK. What is Carers Week? Carers week is the time to raise awareness and give recognition to the 5.8 million carers in