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Date: 26 Jun, 2017 Rare Disease UK are coordinating a new project to find out more about children and young people’s experiences of living with a rare, genetic or undiagnosed condition. “This project will
Support this Inspirational Family! Please support Sue Manzoor whose beautiful niece, Maariyah sadly passed away in December, shortly before her 17th birthday. In Maariyah’s memory the family have decided to raise
Today, 28th February 2017 is Rare Disease Day. Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact