#AlstromSyndrome


Groove to the Alstrom Stroove – Sneak Peek!

Date: 17 Jan, 2020  No Comments  ASUK USER

This film is a must see – bringing together clinicians, families and the ASUK team to Groove to the Alstrom Stroove! Alström Syndrome UK are always looking for fun and


Hot off the press!! – the Winter newsletter is out NOW!

Date: 13 Dec, 2019  No Comments  ASUK USER

With the cold and wintery nights setting in why not grab something warm and comforting and take 5 minutes to read our latest newsletter. This edition is full to the


We’ve joined the Rare Revolution!

Date: 30 Jul, 2019  No Comments  ASUK USER

We are proud to announce that we are now a Charity Partner and an integral part of the Rare Revolution magazine, helping to bring about a dramatic and wide reaching


Be a Rare Champion!

Date: 01 Jul, 2019  No Comments  ASUK USER

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when


Accessible Travel Lounge Opens!

Date: 11 Jun, 2019  No Comments  ASUK USER

Rail passengers using Birmingham New Street Station can now use a new assisted travel lounge which opened on the 10th June 2019. The lounge was provided by Network Rail as


Disabled Blue Badge Rules are Changing

Date: 10 Jun, 2019  No Comments  ASUK USER

Biggest overhaul to the Blue Badge Scheme Did you know that the Blue Badge scheme is to undergo the biggest changes since the 1970s? From April 2019, the scheme will