Latest News


Celebrate World AS Day – with a AS Research Webinar

Date: 14 Apr, 2025  No Comments  Alstrom Admin

Celebrate World AS Day To celebrate World Alström Day we will be holding a Research Ready Webinar, where alongside Professor Tim Barrett, we will be able to tell you all


Press Release – AS Research News!

Date: 20 Mar, 2025  No Comments  Alstrom Admin

Press Release Alström Research Developments In October 2024, the Alström Syndrome UK (ASUK) Medical and Scientific Advisory group (MSAG) met to discuss progress in Alström Syndrome (AS) research and to


Rare Disease Day – Westminster was Calling!

Date: 14 Mar, 2025  No Comments  Alstrom Admin

Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact on patients lives. This year we launched the


Exciting Research Opportunity!

Date: 12 Mar, 2025  No Comments  Alstrom Admin

Exciting Research Opportunity: Investigating Neuropathy and Ophthalmic Biomarkers in Alström Syndrome We are pleased to share an exciting opportunity to take part in a ground-breaking research study led by Professor Tarek


All Ears Radio – Goes Live!

Date: 13 Jan, 2025  No Comments  Alstrom Admin

All Ears Radio – Goes Live! Where every story finds a listener… All Ears Radio has been designed for visually impaired radio lovers! ​Our very own Abdullah is not only


Hot off the press… winter newsletter out now!

Date: 18 Dec, 2024  No Comments  Alstrom Admin

Wising you all a lovely time over the festive period. Grab something warm to drink and take 5 minutes to read these uplifting family stories, updates from the conference and