Join our Team

Join our Team

Date: 12 Dec, 2017  No Comments

Trustee Vacancy
Alström Syndrome is a rare genetic syndrome that affects less than 1 in 500,000. Alström Syndrome UK supports those living with the condition, their families and those working with them.
If you would like to use your skills and experience as a Trustee for Alstrom Syndrome UK we very much look forward to hearing from you.

Role Description
We are looking for 2 committed individuals to expand the range of skills within the current Trustee team. We are looking for dynamic and motivated people who can bring their strength, energy, insight and professional expertise alongside strategic vision, to fulfil this voluntary role.  We want to have a wide range of people within the Trustees of the Charity and we seek to be representative of the diverse population we support.   We welcome individuals with previous Trustee experience however we also welcome applications from those whose career path has provided the expertise we seek. We are particularly keen to hear from individuals with experience of the following areas fundraising, governance, Scientific/clinical, HR and financial.

Trustees are expected to:

  • Attend 3 face to face Board meetings a year (currently at the weekend in Birmingham)
  • Contribute advice and support at our regular evening telephone conferences (minimum quarterly)
  • Attend Alström Syndrome UK conferences

This is a voluntary position; expenses will be paid in line with our expenses policy

How to apply:
If you would like to express your interest in this position, please send a covering letter along with your CV.  Your CV will be considered by the Board and a response will be sent to you in writing. Please send via email to

Closing date:
Completed applications should be returned to us before 5pm on 12th January 2018.  Applications received after that time may be considered if we have any further places available.

This role will require a DBS check to be undertaken.